Lack of Support in South West for Families of Muscle Disease Victims ; the Lives of People Affected by Rare Muscle Diseases in the South West Are Being Ruined Due to a Lack of Specialist Care, According to a Survey.

Summary

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The lives of people affected by rare muscle diseases in the South West are being ruined due to a lack of specialist care, according to a survey.

The Muscular Dystrophy Campaign says families of people in the Westcountry with the diseases are experiencing severe financial hardship and a lack of support, in its first-ever national patient survey.

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Extract

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Lack of Support in South West for Families of Muscle Disease Victims ; the Lives of People Affected by Rare Muscle Diseases in the South West Are Being Ruined Due to a Lack of Specialist Care, According to a Survey.

There are nearly 5,000 people in the South West with muscle diseases.

The survey, State of the Nation, has been ...

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